The Vice Chair is a key leadership role in our voluntary charity not a ceremonial title so the opportunity to make a difference.
You will work closely with the Chair to ensure we are legally compliant, well-governed and strategically effective.
You will also help lead the board, shape our direction and step in for the Chair whenever needed.
This role requires proven experience, energy and a strong commitment to our mission.
All trustees share responsibility for making sure that the charity's money is safe, used properly and accounted for.
Trustees must:
Key Responsibilities:
Essential:
Desirable:
We are a unique disability, chronic illness neurodivergent (autistic, ADHD, dyspraxic) all voluntary charity group. We support people of all ages with symptomatic hypermobility or if they have a diagnosis of Ehlers-Danlos syndromes Hypermobility Spectrum Disorders. Nearly all of us are neurodivergent or have neurodivergent children. We have issues with connective tissue.
We started as a village group in 2018 and now grown across Sussex and beyond. We are multi-award winning particularly in Covid as Covid champions and recently the autism support group and peoples award for autism heroes in 2021/22.
Our aims are to actively support our members by giving them a safe space with belief. We are one of the most neglected stigmatised groups particularly adults were not allowed to be neurodivergent or any of us have invisible health issues or pain. We offer personalised support as we have musculoskeletal injuries and pain inside and on surface of body.
Mon | Tue | Wed | Thu | Fri | Sat | Sun | |
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Morning | Yes | Yes | Yes | Yes | Yes | Yes | No |
Afternoon | Yes | Yes | Yes | Yes | Yes | Yes | No |
Evening | Yes | Yes | Yes | Yes | Yes | No | No |
Time & Commitment • 3-7 hours per week across meetings, preparation, governance tasks and events. • Trustee board meetings 4 x year plus subcommitee meetings. • Most work is remote, but occasional in-person attendance is expected. • This is an active, involved role for someone who has time to give in office hours as well as evening as needed, keen, proactive and deeply aligned with our vision.
Working from home
To register your interest in this opportunity you will need to register with us.